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22 Jan 2014 by Chris Boughton
As I head into the last lap of my 3-year degree, I am well aware that it is physically much more of a struggle for me than it was at the start. But I can see the finishing line and I will get across it – no matter what it takes. I also know that I am going to really miss this course when it is over despite how difficult PD has made it for me.
17 Jan 2014 by Briony Cooke
Recently, I have realised that physical and mental activity is essential not only for fitness, but also for pleasure. For me the greatest discovery has been singing, which is my main pursuit and a way of taking me out of the world of PD.
About a year after I was diagnosed with Parkinson’s disease (PD) I started to lose weight. Over a period of about two months I lost around 2st (28lb) taking my weight from 14st down to around 12st. At just over 6ft tall I was a little overweight for my height at 14st but 12st was underweight and there was no sign of the weight loss slowing down. I felt sure that I was eating exactly as I had done before the weight loss started but the situation obviously needed medical investigation.
07 Jan 2014 by Chris Boughton
At the time I was convinced that all this PD activity was the best thing for me, but I know that my wife felt otherwise. She tells me that I am far easier to live with and much more relaxed since I eased off the PD pedal and buried myself in a BA. In fact she is really quite concerned that I may default to PD mode again when my degree course finishes next summer.
17 Dec 2013 by Briony Cooke
Once the big day comes and all the guests are here, my role will be bossing, not actually cooking. Fortunately, we have several very good cooks, and family who will take over the difficult tasks of lifting and pouring, and hopefully avoid the kind of mess that I leave behind every time I cook: flour scattered, dripping splattered and a trail of drips to the waste bin. Cooking with Parkinson’s is always messy and often hazardous. It impairs my balance, and lifting a heavy turkey out of the oven is impossible.
12 Dec 2013 by Chris Boughton
Isn’t it wonderful when you carefully plan something and it all works out pretty much as planned, especially when one of the variables is Parkinson’s disease (PD). I guess the opposite is ‘fail to plan and you plan to fail’. I have just finished two very demanding days at college and although I am very tired I am also very relieved.
06 Dec 2013 by Chris Boughton
I have only missed one lesson so far this semester due to PD, and that is by far the best attendance I have achieved in any semester on this course. I would like to kid myself that this has been achieved because my illness has eased since I started in September 2011, but I know that is not true. My PD, sadly, marches steadily on and my rate of decline is unchanged, but I have learnt more techniques for outwitting it.
03 Dec 2013 by Briony Cooke
The impact of Parkinson’s upon my life has been far-reaching, and has affected my self-image, my skills, my activities and eventually my career. Since my diagnosis the symptoms of Parkinson’s – slowness of movement, postural instability, rigidity and tremor – have progressively limited my physical activities.
13 Nov 2013 by Chris Boughton
There has been much speculation that PD can cause serotonin instability in the brain, which possibly explains some of my low periods, but then just the daily suffering from PD is enough to drag anyone down. However the third year of my BA in English and History is now well under way and I have lots to distract me and, consequently, lots to worry about rather than PD!!
05 Nov 2013 by Chris Boughton
I am not sure exactly where I am going with all this self-indulgent reflection but I think that basically I am looking back positively despite some of the sadness. Parkinson’s disease has radically affected my life over the past 10 years but others have had, or are having, their own battles too.
 
 
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#Parkinsons Jill was diagnosed with Parkinsons in May 1997. She talks us through the 16 years since her diagnosis http://t.co/6IU5JgS33v
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#Parkinsons 'Deep Brain Stimulation': Read Briony's latest blog http://t.co/ncomJIgmxv